When my wife and I found out we were having a baby girl, it felt like a dream come true. But then the doctor told us she’d be born with #SpinaBifida and would never move from the neck down. They even suggested we terminate the pregnancy. That was heartbreaking, but we refused to give up. We promised she would be loved and have a happy life—and Cesily proved them all wrong. From her first movements as a newborn to years of physical therapy, she’s conquered every obstacle with strength, joy, and determination.
We found hope through
@BorisKodjoe and
@NicoleAriParker, whose daughter inspired us during our darkest days. Fast forward to today, Cesily’s photo landed in the hands of a casting director, and against all odds, she was cast as young #Nessarose in Wicked—an authentic wheelchair user at just four years old!
On set, we met
@marissa_edob , who plays the adult Nessarose. Marissa has become a close family friend and a shining example of talent and grace. Seeing her bring her gifts to the screen inspires us deeply.
We also met Chantelle Nassari (
@MamaChanos), the disability coordinator, who ensured the set was fully accessible for Cesily and Marissa. Her role was vital, and I believe every production—and event—should have a disability coordinator. Inclusion is not optional; it’s necessary.
Representation matters—it saves lives and changes hearts. To every parent of a child with spina bifida: know there is light at the end of the tunnel. And to every filmmaker: let’s show the world the beauty of every life.
🎥💚 Thank you, Wicked. Thank you, Oz. And thank you, Cesily, for showing us how magical life truly is.
Go see Wicked!!!!
#RepresentationMatters #SpinaBifidaAwareness #WickedTheMovie #AuthenticityInFilm #WheelchairUser #InclusionMatters #AccessibleWorld